Little Boy’s Costume Inspiration for Chronically ill; Prayers for Those Affected by Sandy

This has been a very hard week on everyone especially those affected by Hurricane Sandy. Under the circumstances, I didn’t want to blog about the best mascaras or lipsticks–it all seems rather inappropriate for now.  As I wait to hear from some of my loved ones on the East Coast, I want to send my prayers and thoughts to Sandy’s survivors, victims, and their loved ones.  I also want to shed light on an article in the Huffington Post featuring a little boy who’s Halloween costume made me smile. For all the chronically ill people reading this and all those with disabilities–invisible or otherwise–I hope his picture makes you smile too! 

One Thing That Made Me Smile

This little boy Carter, is in a wheelchair because he has spina bifida. As the article says, this disease is a birth defect where the spinal canal and backbone do not close before the child is born.  Many children with disabilities have a hard time finding a Halloween costume. I’m still waiting on my Superhero who uses a wheelchair! Anyway, as you seen see in the video and picture, Carter’s dad got very creative, and built an ice-cream truck around his wheelchair. Isn’t he adorable?

Carter’s Halloween Costume

Tomorrow at work when I reach that point, inevitably, when I’m exhausted and thinking, Jesus make this work, I’ll remember Carter. And smile. Surely, if he can live with his illness at such a young age, I can live with all my illnesses too!

–Your Stylist, Jessica Gimeno

JessicaGimeno

Hi, I have five illnesses--bipolar disorder, myasthenia gravis (neuromuscular autoimmune disease), polycystic ovarian syndrome, asthma, and psoriasis. Most of the organs in my body are affected. I'm dedicated to being a stylist for sick women. As someone who has experienced changes in my appearance due to my 12 meds (including Prednisone), I know how hard it can be when your face and body change overnight. (In fact, because of treatment, between 2008 to 2010, I went from a size 0 to a size 10. While I lost the weight, there are permanent changes in my face and body, which I've grown to appreciate.) My blog will also help women deal with other issues like surviving chronic pain and fatigue. Healthy people can also use this blog as a window into what life with illness is like. Let this website be a place where we can draw strength from each other despite our illnesses and find solutions to our everyday challenges!

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