chronic illness
Rare Disease Day 2026
Recently I spoke at Rare Disease Day; in 2026, February 28 is the official date for Rare Disease Day. I have been living with myasthenia gravis for 18 years, which is a neuromuscular autoimmune disease that impacts fewer than 1 in 100,000 people
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5 Reasons People Abandon a Sick Friend
In October 2008, at the age of 24, I was diagnosed and hospitalized for myasthenia gravis, MG, a neuromuscular autoimmune hurricane disease. One of my long-time friends since high school, Ken, told me he would visit me at the hospital right away. I waited. And waited. Two weeks somehow became five years.
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See Me Speak on June 27 at 12 pm CST! Surviving Graduate School While Managing Your Mental and Physical Health
Come see me speak (virtually) next Tuesday, June 27 from noon to 1 pm CST! I’ll be talking about surviving graduate school when you have mental and physical health challenges. Register…
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Thank you for your patience! Growing Pains
Heads up…things might look a bit wonky on this site as I try to make it more accessible…Also see resources for how to request masks in healthcare settings and how to stay covered with the end of the Public Health Emergency.
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Chronic illness is Like Getting Your Heart Broken Again and Again
Does living with chronic illness ever feel like Groundhog’s Day?
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Top 10 Ways to “Vacationize” Your Hospital Visit or Stay – Part 2/2
Check out part 2 of my previous post for people who are sick and tired of spending time in the hospital.
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Top 10 Ways to “Vacationize” Your Hospital Visit or Inpatient Stay-Part 1/2
Do you ever get tired of spending so much time in the hospital?
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Stop Asking Disabled People, “What Happened To You?”
“What happened to you?” “Were you born like this or did something happen to you?” “Why are you in a wheelchair?”
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Faith and Laughter: A Worldview
People often ask me, “How do you stay so positive with all your illnesses?” That’s a very complex question and
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