Top 10 Myasthenia Gravis Articles

10360770_569535236496900_1971983737375433324_nJune is Myasthenia Gravis (MG) Awareness Month.  I’ve been living with MG for six years–I was diagnosed at the age of 24.  MG can happen to both men and women, and people of all races and ages.  

me with ptosis
Fashionably ill ®

It is a neuromuscular autoimmune disease whose symptoms are often confused with multiple sclerosis.

Brief Background

I was called a “textbook case” of MG.  I had a constellation of symptoms that included: extreme fatigue, loss of balance/falling down, intermittent loss of feelings in my arms and legs, difficulty swallowing (dysphasia), difficulty talking, drooping eyelids, and respiratory problems.  Breathing problems are the last symptom–after those problems started, I reached “myasthenic crisis,” which is what happens when MG patients need immediate hospitalization.  Over the years my treatments have included: plasmapheresis, medications, Reliv, and a thymectomy.  During my thymectomy, doctors cut my neck open, removed my thymus (an organ near the heart), and glued my neck back together. This is only shared a brief background of my six-year battle with  MG.  Since I’m sharing my top MG articles, I’ll let the posts below tell the rest of my MG story.  MG is one of my five illnesses (others: bipolar II, polycystic ovarian syndrome, asthma, psoriasis).  Not all MG patients have the same course but I try to spread awareness of MG (and chronic illnesses in general) through this blog.

Top 10 Myasthenia Gravis Posts (by popularity)

10.  Who Am I? The Chronically ill Person’s Identity Crisis

9.    Disability ≠ Less Attractive (Part 1)

8.    Victim Blaming Happens to Sick People Too

7.     5 Tips for Reconnecting With a Sick Friend

6.     Chronic illness is Like Getting Your Heart Broken Again and Again

5.     Living With Bipolar Disorder & Chronic Body Pain: 6 Dilemmas

4.     Rebekah’s Story: Young Woman Talks About Living With Myasthenia Gravis

3.      5 Different Reactions to Empire’s Portrayal of Myasthenia Gravis

2.     Myasthenia Gravis Patients Share Pictures of Ptosis

((drumroll please…))

1.    5 Reasons People Abandon a Sick Friend

Got MG Resources You’d Like to Share?

Here is a list of Myasthenia Gravis Online Resources, which includes web sites, fact sheets, Twitter accounts, Facebook pages and groups.

–Your Stylist, Jessica Gimeno

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JessicaGimeno

Hi there! I am a patient advocate, writer, and public speaker most well known for my TEDx Talk, “How to Get Stuff Done When You Are Depressed.” As someone who is juggling 5 illnesses: bipolar 2, myasthenia gravis, endometriosis, psoriasis, and asthma, I’m passionate about helping people who navigate life with both chronic physical & emotional pain. If you’re interested in hiring me to speak at your event, check out the CONTACT tab.

One thought on “Top 10 Myasthenia Gravis Articles

  • April 25, 2017 at 7:26 am
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    Thank you for the insight about autoimmune disease and how it can/will be life changing!

    Reply

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