Top 10 Myasthenia Gravis Articles

10360770_569535236496900_1971983737375433324_nJune is Myasthenia Gravis (MG) Awareness Month.  I’ve been living with MG for six years–I was diagnosed at the age of 24.  MG can happen to both men and women, and people of all races and ages.  

me with ptosis
Fashionably ill ®

It is a neuromuscular autoimmune disease whose symptoms are often confused with multiple sclerosis.

Brief Background

I was called a “textbook case” of MG.  I had a constellation of symptoms that included: extreme fatigue, loss of balance/falling down, intermittent loss of feelings in my arms and legs, difficulty swallowing (dysphasia), difficulty talking, drooping eyelids, and respiratory problems.  Breathing problems are the last symptom–after those problems started, I reached “myasthenic crisis,” which is what happens when MG patients need immediate hospitalization.  Over the years my treatments have included: plasmapheresis, medications, Reliv, and a thymectomy.  During my thymectomy, doctors cut my neck open, removed my thymus (an organ near the heart), and glued my neck back together. This is only shared a brief background of my six-year battle with  MG.  Since I’m sharing my top MG articles, I’ll let the posts below tell the rest of my MG story.  MG is one of my five illnesses (others: bipolar II, polycystic ovarian syndrome, asthma, psoriasis).  Not all MG patients have the same course but I try to spread awareness of MG (and chronic illnesses in general) through this blog.

Top 10 Myasthenia Gravis Posts (by popularity)

10.  Who Am I? The Chronically ill Person’s Identity Crisis

9.    Disability ≠ Less Attractive (Part 1)

8.    Victim Blaming Happens to Sick People Too

7.     5 Tips for Reconnecting With a Sick Friend

6.     Chronic illness is Like Getting Your Heart Broken Again and Again

5.     Living With Bipolar Disorder & Chronic Body Pain: 6 Dilemmas

4.     Rebekah’s Story: Young Woman Talks About Living With Myasthenia Gravis

3.      5 Different Reactions to Empire’s Portrayal of Myasthenia Gravis

2.     Myasthenia Gravis Patients Share Pictures of Ptosis

((drumroll please…))

1.    5 Reasons People Abandon a Sick Friend

Got MG Resources You’d Like to Share?

Here is a list of Myasthenia Gravis Online Resources, which includes web sites, fact sheets, Twitter accounts, Facebook pages and groups.

–Your Stylist, Jessica Gimeno

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JessicaGimeno

Hi, I have five illnesses--bipolar disorder, myasthenia gravis (neuromuscular autoimmune disease), endometriosis, asthma, and psoriasis. Most of the organs in my body are affected. I'm dedicated to being a stylist for sick women. As someone who has experienced changes in my appearance due to my 12 meds (including Prednisone), I know how hard it can be when your face and body change overnight. (In fact, because of treatment, between 2008 to 2010, I went from a size 0 to a size 10. While I lost the weight, there are permanent changes in my face and body, which I've grown to appreciate.) My blog will also help women deal with other issues like surviving chronic pain and fatigue. Healthy people can also use this blog as a window into what life with illness is like. Let this website be a place where we can draw strength from each other despite our illnesses and find solutions to our everyday challenges!

One thought on “Top 10 Myasthenia Gravis Articles

  • April 25, 2017 at 7:26 am
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    Thank you for the insight about autoimmune disease and how it can/will be life changing!

    Reply

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