Recap of 2015-2016 Online New Year’s Eve Party
This year’s party, our 3rd Annual Online New Year’s Eve Party, was a smashing success. Somewhere between 100-150 guests attended
Read MoreThis year’s party, our 3rd Annual Online New Year’s Eve Party, was a smashing success. Somewhere between 100-150 guests attended
Read MoreYesterday, two things happened: First, I learned of a contest for artists with rare diseases. I entered it. (You can
Read MoreOver the weekend, I was getting my butt kicked by pain from both the polycystic ovarian syndrome (PCOS) and psoriasis. At
Read MoreOne of the hardest aspects of chronic illness is saying goodbye to hobbies and interests. Some of us have even
Read MoreThis is a picture of my mom and my nephew, Mikko, at his 8th birthday over the weekend. I missed
Read MoreWhen people who are sick complain about their illnesses–whether it’s physical pain, fatigue, or depression–one of the most common responses
Read MoreDid you know that by the year 2020, the World Health Organization says depression will be the second greatest disability in
Read MoreI’m in so much pain right now I probably shouldn’t even be writing. But I am. This week has been
Read MoreStarting Monday night, I got this terrible headache. Somehow, I pushed through and managed to write a new blog post. The
Read MoreJune is Myasthenia Gravis (MG) Awareness Month. MG is a neuromuscular autoimmune disease many people do not know about. People with
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