My Appearance on The Whitney Reynolds Show
Time flies! This memory came up in my feed – back when I was on The Whitney Reynolds Show six years ago talking about life with chronic illness.
Read MoreTime flies! This memory came up in my feed – back when I was on The Whitney Reynolds Show six years ago talking about life with chronic illness.
Read MoreRecently I spoke at Rare Disease Day; in 2026, February 28 is the official date for Rare Disease Day. I have been living with myasthenia gravis for 18 years, which is a neuromuscular autoimmune disease that impacts fewer than 1 in 100,000 people
Read MoreDoes living with chronic illness ever feel like Groundhog’s Day?
Read MoreCheck out part 2 of my previous post for people who are sick and tired of spending time in the hospital.
Read MoreDo you ever get tired of spending so much time in the hospital?
Read More“What happened to you?” “Were you born like this or did something happen to you?” “Why are you in a wheelchair?”
Read MoreDo chronic health problems wear you out? Check out my latest video on pacing and where you can find community for people with chronic illness and disabilities.
Read MoreMoments of peace when you have a chronic illness or five can be few and far between. How do we celebrate knowing the unpredictability of illness?…
Read MoreCheck out my review of the book, ChronicBabe 101! This book is a gem for chronically ill people and those who love them.
Read MoreLast week I had a day where I was really off my A-game at work. The night before I woke
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