Sometimes You Shouldn’t Work Through the Pain (Emotional or Physical)
I’ll share with you a little secret about health activists: many times we write about the importance of self-care whilst
Read moreI’ll share with you a little secret about health activists: many times we write about the importance of self-care whilst
Read moreYesterday, you may have heard my interview on Sirius XM. If not, here’s a link to listen to my interview
Read moreWhat are you doing tomorrow afternoon? Tomorrow, August 23rd, at 6 pm EST/5 pm CST, I will be on The
Read moreLast week, bad news was everywhere. And in your face. There were the deaths of Alton Sterling in Louisiana and Philando
Read moreAnother party in the books. I can’t believe this was our sixth party since I started these online parties during SyFy
Read moreDid you know that 1 in 10 Americans has a rare disease? In the U.S., a rare diseases is defined
Read moreThis year’s party, our 3rd Annual Online New Year’s Eve Party, was a smashing success. Somewhere between 100-150 guests attended
Read moreYesterday, two things happened: First, I learned of a contest for artists with rare diseases. I entered it. (You can
Read moreOver the weekend, I was getting my butt kicked by pain from both the polycystic ovarian syndrome (PCOS) and psoriasis. At
Read moreOne of the hardest aspects of chronic illness is saying goodbye to hobbies and interests. Some of us have even
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