You’re Invited to My Online 4th of July Twilight Zone Party (07/03-07/05)
LINK to Event Page–click here! It’s that time of the year again when people from around the world gather online to
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Community
Recap of 2015-2016 Online New Year’s Eve Party
This year’s party, our 3rd Annual Online New Year’s Eve Party, was a smashing success. Somewhere between 100-150 guests attended
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Illness: Light Breaking Through The Darkness
Yesterday, two things happened: First, I learned of a contest for artists with rare diseases. I entered it. (You can
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5 Realities of Living With Multiple Diseases Simultaneously
Over the weekend, I was getting my butt kicked by pain from both the polycystic ovarian syndrome (PCOS) and psoriasis. At
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Illness & Social Life: I Missed My Nephew’s Birthday…And Why It’s Okay
This is a picture of my mom and my nephew, Mikko, at his 8th birthday over the weekend. I missed
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5 Tips for Reconnecting with a Sick Friend
One of the most painful things about being sick is having friends abandon you. When I wrote 5 Reasons People
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Disability, Assault, & Helplessness: Be Aware of The Bystander Effect
Most people with illnesses can recall the moment they realized their lives changed forever. For example, a reader with lupus
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“The Only Disability is a Bad Attitude”–Not So Fast!
One expression people with illnesses and disabilities often hear is, “The only disability in life is a bad attitude.” I’m sure people who
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Losing Someone to Illness When You’re Also Sick
These past few weeks I’ve found it hard to write. Anything. When you lose a good friend, a part of
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5 Obstacles People with Rare Diseases Face; Readers Share Their Stories
Did you know that 1 in 10 Americans has a rare disease? In the U.S., a rare diseases is defined
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