Illness & Social Life: I Missed My Nephew’s Birthday…And Why It’s Okay
This is a picture of my mom and my nephew, Mikko, at his 8th birthday over the weekend. I missed
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Community
5 Tips for Reconnecting with a Sick Friend
One of the most painful things about being sick is having friends abandon you. When I wrote 5 Reasons People
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Disability, Assault, & Helplessness: Be Aware of The Bystander Effect
Most people with illnesses can recall the moment they realized their lives changed forever. For example, a reader with lupus
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“The Only Disability is a Bad Attitude”–Not So Fast!
One expression people with illnesses and disabilities often hear is, “The only disability in life is a bad attitude.” I’m sure people who
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Losing Someone to Illness When You’re Also Sick
These past few weeks I’ve found it hard to write. Anything. When you lose a good friend, a part of
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5 Obstacles People with Rare Diseases Face; Readers Share Their Stories
Did you know that 1 in 10 Americans has a rare disease? In the U.S., a rare diseases is defined
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5 Reasons People Abandon a Sick Friend
In October 2008, at the age of 24, I was diagnosed and hospitalized for myasthenia gravis, MG, a neuromuscular autoimmune
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Illness, Regret, & Dreams
A few weeks ago, I found myself watching a 90s Lifetime movie. Don’t judge me! I was in a Beverly
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Lessons on Companionship, Compassion, & Community From The Twilight Zone
It can be lonely being a fan of The Twilight Zone. When I tell friends that I’m a fan, I
Read MoreThe Truth: Why Don’t Chronically Ill People Speak Up More Often?
When people ask me how I’m feeling and I say “I’m tired,” they assume I’m talking about the chronic fatigue
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