Thank You; Update on Lauryn’s Condition

unnamedIn August, I asked Fashionably ill readers to help make a young woman’s birthday special.  Lauryn was spending her seventeenth birthday in the hospital.  Lauryn has Myasthenia Gravis (MG) and Cerebral Palsy (CP).  Yesterday, I got an update from Lauryn’s mom, Cynthia.  It’s been a harrowing few weeks for Lauryn–she was in critical condition at one point and she did end up having hip surgery while being in Myasthenic crisis.  All that said, Cynthia wants to thank us for our love, support, and cards.  They are overwhelmed by all the cards, balloons, and flowers they received.  Lauryn is at home now but her fight continues.

Please Help Me Find Someone With CP and MG

I asked Cynthia what is one thing Lauryn needs–she said it would help if they could find someone who lives with both MG and CP.  As you can imagine, having both of these diseases is complicated.  None of the doctors that have treated Lauryn have ever dealt with a patient who has both.  Please share this post.  Help us find someone else who lives with both MG and CP.

Thank You!

From the bottom of my heart, I want to thank all of you for stepping up to the plate and reaching out to Lauryn during this difficult time.  MG almost killed me when I was 24-years old.  (I turned thirty this year. )   I am in awe of Lauryn’s strength at such a young age, and I am deeply touched by your compassion.

–Your Stylist, Jessica Gimeno

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JessicaGimeno

Hi there! I am a patient advocate, writer, and public speaker most well known for my TEDx Talk, “How to Get Stuff Done When You Are Depressed.” As someone who is juggling 5 illnesses: bipolar 2, myasthenia gravis, endometriosis, psoriasis, and asthma, I’m passionate about helping people who navigate life with both chronic physical & emotional pain. If you’re interested in hiring me to speak at your event, check out the CONTACT tab.

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