Recap of This Year’s 4th of July Twilight Zone Party
Another party in the books. I can’t believe this was our sixth party since I started these online parties during SyFy
Read more
Myasthenia Gravis
Vacation Pictures from My Surgery
It’s been a few weeks since I’ve posted on Fashionably ill ®. BUT that doesn’t mean things weren’t happening the
Read more
Living With Bipolar Disorder & Chronic Body Pain: 6 Dilemmas
March 30 is World Bipolar Day. Even though I was diagnosed at 18-years old, I have lived with bipolar disorder
Read more
Myasthenia Gravis Patients Share Pictures of Ptosis
People with myasthenia gravis (MG, a neuromuscular autoimmune disease) sometimes refer to ourselves as “snowflakes” because symptoms vary person to
Read more
Updated: 6 Obstacles People With Rare Diseases Face; Readers’ Stories
Did you know that 1 in 10 Americans has a rare disease? In the U.S., a rare diseases is defined
Read more
5 Tips For Being Reliable When You Are Depressed
I have bipolar disorder. When depression comes, it often makes it hard to function. When I’m depressed, every task requires
Read more
Chronic Fatigue Is…30 Fill-in-the Blank Descriptions
Last year, I had an incident where one of my doctor’s assistants were being unhelpful. I needed a standard refill of
Read more
Recap of 2015-2016 Online New Year’s Eve Party
This year’s party, our 3rd Annual Online New Year’s Eve Party, was a smashing success. Somewhere between 100-150 guests attended
Read more
Illness: Light Breaking Through The Darkness
Yesterday, two things happened: First, I learned of a contest for artists with rare diseases. I entered it. (You can
Read more
5 Realities of Living With Multiple Diseases Simultaneously
Over the weekend, I was getting my butt kicked by pain from both the polycystic ovarian syndrome (PCOS) and psoriasis. At
Read more