My Interview with Voices for Change Is Up
Yesterday, you may have heard my interview on Sirius XM. If not, here’s a link to listen to my interview
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Myasthenia Gravis
My Commencement Address for Int’nl Fibromyalgia Institute Graduation
Click on the white triangle below to press play and hear my speech. My speech is called, “Stronger Together: Community
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Recap of This Year’s 4th of July Twilight Zone Party
Another party in the books. I can’t believe this was our sixth party since I started these online parties during SyFy
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Vacation Pictures from My Surgery
It’s been a few weeks since I’ve posted on Fashionably ill ®. BUT that doesn’t mean things weren’t happening the
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Living With Bipolar Disorder & Chronic Body Pain: 6 Dilemmas
March 30 is World Bipolar Day. Even though I was diagnosed at 18-years old, I have lived with bipolar disorder
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Myasthenia Gravis Patients Share Pictures of Ptosis
People with myasthenia gravis (MG, a neuromuscular autoimmune disease) sometimes refer to ourselves as “snowflakes” because symptoms vary person to
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Updated: 6 Obstacles People With Rare Diseases Face; Readers’ Stories
Did you know that 1 in 10 Americans has a rare disease? In the U.S., a rare diseases is defined
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5 Tips For Being Reliable When You Are Depressed
I have bipolar disorder. When depression comes, it often makes it hard to function. When I’m depressed, every task requires
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Chronic Fatigue Is…30 Fill-in-the Blank Descriptions
Last year, I had an incident where one of my doctor’s assistants were being unhelpful. I needed a standard refill of
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Recap of 2015-2016 Online New Year’s Eve Party
This year’s party, our 3rd Annual Online New Year’s Eve Party, was a smashing success. Somewhere between 100-150 guests attended
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