Summer Lovin’ & Physical Therapy (#HAWMC)

Today I continue WEGO’s Health Activist Writer’s Month Challenge (#HAWMC).  But first, I want to say thank you to everyone who joined me tonight for WEGO’s Roundtable on YouTube–if you missed our discussion on how to discuss taboo health issues with health providers, family, and friends, click here for the recording.

wego 29Today’s question is:  Summer is coming up. What plans do you have?  Any family vacation? What do you look forward to in Summer 2014?

(I was exhausted Sunday and Monday so I missed answering those #HAWMC questions.)  But I’ve been looking forward to today’s question if only so I can share this:

Physical Therapy: A New Beginning?

I look forward to this summer.  I don’t take vacations for many reasons including my current lack of insurance.  (See my previous post, “Top 10 Ways to ‘Vacationize’ Your Hospital Visit or Inpatient Stay.”)  I recently started physical therapy for my neuromuscular autoimmune disease, Myasthenia Gravis (MG).  This is the most hopeful I’ve felt about MG in years.  It will be six to nine months of hard work but I look forward to it.  One of my physical therapists (PTs), “D,” distracts me by talking about boxing with me–we discuss things like Manny Pacquiao, one of my favorite people.  Today, Eye of the Tiger was playing.   He asked me if I liked this song–oh boy, he has no idea!  We discussed the differences between the different Rocky films–apparently, Rocky IV is his favorite.

My Prognosis

On my first appointment, “S,” the head PT, gave me some MG tests that were even harder than the ones my neuro gives me!  He said that I was weaker than some of his 85-year old clients.  But he also said that I was the strongest MG patient he’d seen (pre-physical therapy).  Living with chronic illness shines a spotlight on the uncertainty of life.  But one (of many things) that keeps me going is the hope that things may get better.

What are you doing this summer?

–Your Stylist, Jessica Gimeno 

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Hi there! I am a patient advocate, writer, and public speaker most well known for my TEDx Talk, “How to Get Stuff Done When You Are Depressed.” As someone who is juggling 5 illnesses: bipolar 2, myasthenia gravis, endometriosis, psoriasis, and asthma, I’m passionate about helping people who navigate life with both chronic physical & emotional pain. If you’re interested in hiring me to speak at your event, check out the CONTACT tab.

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