What is Courage? Illness & Fear

rock-climbing-desktop-hd-wallpaper-free-mountain-picturesTonight I was talking to my niece, CJ.  (In Filipino culture, she is considered my niece. Because she is the daughter of my oldest cousin who is eighteen years older than I, we are only three years apart).  I have been having a lot of problems with my ears and eyes the past three weeks.  I’ve been wearing shades to work because light aggravates the sensitivity.  My left eye and left ear have been in tremendous pain.

The Right Words

CJ and I were talking about our plans for Thanksgiving.  I asked her if she would attend our family celebration, where we usually have forty relatives.  I told her that I would probably miss Thanksgiving again because I couldn’t take the risk of being exposed to someone with a cold or the flu.  A couple years ago, when I missed the holiday, she surprised me by coming over as soon after the family gathering ended.

As we were catching up, I told her in a matter of fact way about my conversation with the ENT last Friday.  He informed me about the results of my tests and said that I could keep taking my medication.  I told him that I’d been taking it for over a year and the pain was still tremendous.  Then, he told me I could have surgery, which consisted of having my ears cut open and inserting tubes.  It would take six to nine months to recover.  I told CJ that I don’t want to have another surgery again; my last surgery was five years ago and I never want to relive those post-recovery months.  I told her that I was going to a clinic on Monday that I feel hopeful about; they don’t use methods like surgery.  They use the power of nutrient therapy with minerals and essential amino acids (which are often stripped away in our over-processed foods).  They also do not advise patients to hastily abandon their medications.  I learned about them at a brain science symposium I was invited to attend last month because of my previous work in nonprofit.

Then, CJ, paused and said, “You are the strongest person I know, Ate Jessica.  Really.  I don’t know how I could do what you do.  I admire you so much.”

I started to cry a little.  Since my depressing conversation with the ENT six days ago, I have not cried.  I cried because CJ spoke the right words at the right time.  I realized that I am more nervous than I realized.  I am scared.  Scared of losing my hearing.  Scared of the uncertainty.  Scared because I already lost my sense of smell years ago, and I don’t want to lose another sense.  Scared that I might have to have surgery.  If I had to place a bet, I don’t think I will have surgery.  Still, the very thought of having my ears cut open scares me.

 Feeling So Many Things At Once

A person can feel many things at the same time.  The past three weeks there were moments of peace.  Peace after prayer.  Frustration too at having to spend so much time in the dark–literal darkness.  And yes some depressive moments.  I do feel optimistic about this clinic.  But tonight I realized that I am scared.  The first step in dealing with fear is acknowledging when we are afraid.

Courage Is Not The Absence of Fear

I once had a pastor who preached on bravery and courage (specifically Joshua chapter one).  He said that brave people do face fear.  Courage is not the absence of fear, but acting in spite of fear.  If there was no fear or anxiety, it wouldn’t be courageous to act.  I think people who live with chronic illnesses are some of the bravest people I know.  Just being is courageous.

–Your Stylist, Jessica Gimeno

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Hi, I have five illnesses--bipolar disorder, myasthenia gravis (neuromuscular autoimmune disease), polycystic ovarian syndrome, asthma, and psoriasis. Most of the organs in my body are affected. I'm dedicated to being a stylist for sick women. As someone who has experienced changes in my appearance due to my 12 meds (including Prednisone), I know how hard it can be when your face and body change overnight. (In fact, because of treatment, between 2008 to 2010, I went from a size 0 to a size 10. While I lost the weight, there are permanent changes in my face and body, which I've grown to appreciate.) My blog will also help women deal with other issues like surviving chronic pain and fatigue. Healthy people can also use this blog as a window into what life with illness is like. Let this website be a place where we can draw strength from each other despite our illnesses and find solutions to our everyday challenges!

2 thoughts on “What is Courage? Illness & Fear

  • November 22, 2014 at 7:00 pm

    I’ll keep praying for you. You are brave and inspiring. I like to think I have such strong faith, but have withered under far less pressing obstacles. In the words of Martin Lawrence You Go Girl!

    • December 12, 2014 at 6:56 pm

      Thank you, Allen! I just saw this comment now. Your support means a lot. God bless you.


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