Thank You; Update on Lauryn’s Condition

unnamedIn August, I asked Fashionably ill readers to help make a young woman’s birthday special.  Lauryn was spending her seventeenth birthday in the hospital.  Lauryn has Myasthenia Gravis (MG) and Cerebral Palsy (CP).  Yesterday, I got an update from Lauryn’s mom, Cynthia.  It’s been a harrowing few weeks for Lauryn–she was in critical condition at one point and she did end up having hip surgery while being in Myasthenic crisis.  All that said, Cynthia wants to thank us for our love, support, and cards.  They are overwhelmed by all the cards, balloons, and flowers they received.  Lauryn is at home now but her fight continues.

Please Help Me Find Someone With CP and MG

I asked Cynthia what is one thing Lauryn needs–she said it would help if they could find someone who lives with both MG and CP.  As you can imagine, having both of these diseases is complicated.  None of the doctors that have treated Lauryn have ever dealt with a patient who has both.  Please share this post.  Help us find someone else who lives with both MG and CP.

Thank You!

From the bottom of my heart, I want to thank all of you for stepping up to the plate and reaching out to Lauryn during this difficult time.  MG almost killed me when I was 24-years old.  (I turned thirty this year. )   I am in awe of Lauryn’s strength at such a young age, and I am deeply touched by your compassion.

–Your Stylist, Jessica Gimeno

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JessicaGimeno

Hi, I have five illnesses--bipolar disorder, myasthenia gravis (neuromuscular autoimmune disease), polycystic ovarian syndrome, asthma, and psoriasis. Most of the organs in my body are affected. I'm dedicated to being a stylist for sick women. As someone who has experienced changes in my appearance due to my 12 meds (including Prednisone), I know how hard it can be when your face and body change overnight. (In fact, because of treatment, between 2008 to 2010, I went from a size 0 to a size 10. While I lost the weight, there are permanent changes in my face and body, which I've grown to appreciate.) My blog will also help women deal with other issues like surviving chronic pain and fatigue. Healthy people can also use this blog as a window into what life with illness is like. Let this website be a place where we can draw strength from each other despite our illnesses and find solutions to our everyday challenges!

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