Listening Speaks Volumes

One of the most popular things chronically ill people hear is, “If you put your faith in Christ, you wouldn’t be sick.”  Or, “If you prayed harder, God would heal you.”  No one in pain, religious or not, wants to be preached to.  luccislap2Another message sick people don’t like hearing is, “If you were more positive, you wouldn’t be sick.”  (This is not an article on what not to say to sick people—see my previous post, “8 Things Not to Say to a Sick Person.”)  However, I was inspired to write because of two powerful, very different conversations I had last week.

The First Conversation

I called my friend because it was her birthday.  I had two goals with that phone call:  to wish my friend a happy birthday and to ask her how she’s doing.  I’m a big believer in being authentic.  As someone who was diagnosed bipolar II at the age of 18 after a friend’s suicide, “how are you” is not a greeting for me like “hello” or “good evening.”  I genuinely care about the answer when I ask a friend how she is doing.  Similarly, when a friend asks me how I’m doing, I tell the truth.  Anyway, after I listened to my friend update me on her life, she asked me how I was doing.  I responded by telling her I was falsely accused of something, was having relationship problems with a new friend, and that I’ve been stuck in insurance purgatory between the Affordable Care Act and Medicaid.  Earlier that day the hospital called to tell me that if I couldn’t pay a $350 deposit at my forthcoming neurological visit for my autoimmune disease, they would cancel my appointment.  My friend responded by saying, “You sound bitter.  From what I know of you, you’re always so positive.”  This was followed by a message about trusting in God more.  I was hurt.  I’ve often blogged about the power of gratitude and I know I wouldn’t have survived my buffet of illnesses without my faith.  But I also believe that everyone is allowed to have “bad days.”  I tried to gently explain this.  I also said that if she had four illnesses (bipolar, Myasthenia Gravis, polycystic ovarian syndrome, asthma) and was being harangued by bill collectors and had been falsely accused of something at work, she would probably not be sunshine and rainbows everyday.

Why We Cling to Platitudes

Being positive is important.  But so is listening when a friend is in trouble—I mean really listening, not preaching.  People, who sometimes mean well, preach platitudes (like saying “time heals all wounds” when someone has suffered a traumatic event) because it’s hard to accept that bad things happen to good people.  Understanding that we are not in complete control of our destiny and that anyone can get sick is frightening.

My nephew, Mikko, has mastered the art of listening.  He’s only six but when he sees me tired or in pain, he puts his hand on my arm and sits with me in silence.  Occasionally, he’ll try to tell jokes to make me laugh.  He’s been my guardian angel/self-appointed doctor since he was two-years old.

When In Doubt….

10155093_598399586911400_5853068817832914429_nThe second eye-opening conversation I had last week was with my cousin whom I call, “Kuya Jon.”  (Kuya in Tagalog is a term of endearment meaning “older brother.”)  I called him up for his birthday.  I was surprised I caught him.  He’s a very busy pastor.  After we talked about how he was doing, he asked me how I was doing.  I told him about my trials.  Kuya said he was shocked that the hospital was so blunt.  He felt bad about my financial and relationship problems.  What he never once told me was that I should have more faith or be more positive.  The preacher never preached to me!  Just having him listen to me made me feel much better.  When in doubt about what to say, the best thing we can do is listen.

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–Your Stylist, Jessica Gimeno

 

JessicaGimeno

Hi, I have five illnesses--bipolar disorder, myasthenia gravis (neuromuscular autoimmune disease), polycystic ovarian syndrome, asthma, and psoriasis. Most of the organs in my body are affected. I'm dedicated to being a stylist for sick women. As someone who has experienced changes in my appearance due to my 12 meds (including Prednisone), I know how hard it can be when your face and body change overnight. (In fact, because of treatment, between 2008 to 2010, I went from a size 0 to a size 10. While I lost the weight, there are permanent changes in my face and body, which I've grown to appreciate.) My blog will also help women deal with other issues like surviving chronic pain and fatigue. Healthy people can also use this blog as a window into what life with illness is like. Let this website be a place where we can draw strength from each other despite our illnesses and find solutions to our everyday challenges!

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