I’ll Be Back

terminatorI last posted an entry Sunday and have been trying to get back to the blog but I’ve been exhausted.  A couple weeks ago I spoke at a convention before pharmaceutical companies discussing the patient’s perspective.  This week I went to the hospital.  For the past few months, I’ve been struggling with an increasingly uncomfortable lesion on my neck (psoriasis).

Finally!

Because I had no insurance, the hospital refused to treat me and I was caught in “insurance purgatory” between the Affordable Care Act, Medicaid, and the hospital.  Anyway, I recently received my medical card and went to the hospital this week.  After being examined, the dermatologists said my lesion was treatable, contained (to my neck and scalp), and would not spread.  I know how fast an autoimmune disease can spread.  (On average, it takes one to three years for a patient with Myasthenia Gravis (MG) to develop all of the symptoms.  In fact, some patients never develop all of the symptoms.  In 2008, I went from exhibiting one symptom to all the symptoms in four months!)  Already having other diseases, my main concern these past few months was to keep my condition from spreading (whilst keeping the MG, polycystic ovarian syndrome, and bipolar disorder at bay).  I was extremely relieved this week.  But I am also very tired.

Got Any Myasthenia Gravis Resources You Want Me to Share?

I’ll get back to posting about Myasthenia Gravis Awareness Month hopefully tomorrow.  Do you have an MG blog, Twitter account, or Facebook page you’d like to me share?  Later, I’ll be posting makeup tips for summer humidity.   Soon I’ll be blogging about 4 tips for dealing with physicians who deny you have an illness.

What Are You Doing Next Week?

Maybe some of you will be joining me next week for the online 4th of July Party I’m throwing on Facebook during SyFy’s Twilight Zone marathon (invitation here)?  Last New Year’s Eve, fifty guests came.  Everyone is welcome.

Thank you for your patience as I take a moment to breathe.  As Arnold said, “I’ll be back.”  In the meantime, you can meet other readers (who fight a variety of illnesses) on Fashionably ill’s Facebook page.  “Like” us here: https://www.facebook.com/fashionablyill 

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–Your Stylist, Jessica Gimeno

JessicaGimeno

Hi, I have five illnesses--bipolar disorder, myasthenia gravis (neuromuscular autoimmune disease), polycystic ovarian syndrome, asthma, and psoriasis. Most of the organs in my body are affected. I'm dedicated to being a stylist for sick women. As someone who has experienced changes in my appearance due to my 12 meds (including Prednisone), I know how hard it can be when your face and body change overnight. (In fact, because of treatment, between 2008 to 2010, I went from a size 0 to a size 10. While I lost the weight, there are permanent changes in my face and body, which I've grown to appreciate.) My blog will also help women deal with other issues like surviving chronic pain and fatigue. Healthy people can also use this blog as a window into what life with illness is like. Let this website be a place where we can draw strength from each other despite our illnesses and find solutions to our everyday challenges!

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