Today is Fibromyalgia Awareness Day. But I actually started working on this list back in March after a reader wrote me asking for help in living with fibromylagia. Many of the accounts and websites below are run by readers of Fashionably ill or friends of mine. In the case of Emma12Sings, whose YouTube channel I included below, her mother reads this blog. It’s important to listen to each others’ stories. Fibromyalgia is an invisible illness but the pain and fatigue are real. All too often, fibro patients have a hard time getting taken seriously. Having many friends with fibro, I know their pain is real. It is not imagined or an “excuse” to avoid work . Along those lines, here’s an excellent article from Chronic Mom called, “Top 5 Reasons Fibromyalgia is the Best ‘Fake’ Disease.”
National Fibromyalgia Association – FMAware.org
Chronic Babe is run by my friend, Jenni Prokopy. Even though I don’t have fibromyalgia, I’ve learned a lot from her about living with chronic illness.
Here’s a link to Chronic Babe’s Facebook page: https://www.facebook.com/chronicbabe
Fibromyalgia Prince – a community page
INSTAGRAM & YOUTUBE
Emma12Sings is run by Emma, an NFA juvenile spokesperson. Emma posts inspirational pictures and quotes on her instagram page. In addition to being on Instagram, she also has a YouTube channel:
Here’s part of Emma’s story where she describes some fibro symptoms:
ONLINE SUPPORT GROUP
Do you have fibromyalgia or know someone who does? What are your symptoms?
–Your Stylist, Jessica Gimeno