Fibromyalgia Online Resources

 

 

Today I am the commencement speaker for the Fibromyalgia Coaching Institute’s Graduation.  It’s a one-hour ceremony that starts at 1 pm Pacific/3 pm CST–you can register here for free.  If you are busy during the ceremony and you’ve registered, you’ll be emailed a link so you can listen later.  Many of the accounts and websites below are run by readers of Fashionably ill or friends of mine. In the case of Emma12Sings, whose YouTube channel I included below, her mother reads this blog.  It’s important to listen to each others’ stories.  Fibromyalgia is an invisible illness but the pain and fatigue are real.  All too often, fibro patients have a hard time getting taken seriously.  Having many friends with fibro, I know their pain is real.  It is not imagined or an “excuse” to avoid work . One of my favorite articles on fibromyalgia is written by Chronic Mom and it’s called, “Top 5 Reasons Fibromyalgia is the Best ‘Fake’ Disease.” 

 

 

TWITTER

@ChronicSass

@FibroCoach

@Emma12Sings 

WEBSITES

Fibromyalgia Coaching Institute — The International Fibromyalgia Coaching Institute’s certification program combines self-paced learning (online live and recorded classes) with independent and mentored coaching practice for 16 weeks.  The Institute offers two certification options: Certified Fibromyalgia Coach and Certified Fibromyalgia Advisor.

National Fibromyalgia Association – FMAware.org

National Fibromyalgia & Chronic Pain Association –NfmCPA

Chronic Babe is run by my friend, Jenni Prokopy.  Even though I don’t have fibromyalgia, I’ve learned a lot from her about living with chronic illness.

Here’s a link to Chronic Babe’s Facebook page: https://www.facebook.com/chronicbabe

http://fibro.tv

WebMD – List of most common fibro symptoms on WebMD

FACEBOOK PAGES

Fibromyalgia Prince – a community page

Fibro Blogger Directory

Fibromyalgia & Chronic Illness Fighters Support

INSTAGRAM & YOUTUBE 

https://instagram.com/emma12sings/

Emma12Sings is run by Emma, an NFA juvenile spokesperson.  Emma posts inspirational pictures and quotes on her instagram page.  In addition to being on Instagram, she also has a YouTube channel:

https://www.youtube.com/user/emma12sings

Here’s part of Emma’s story where she describes some fibro symptoms:

ONLINE SUPPORT GROUP

Daily Strength

Your Turn?

Do you have fibromyalgia or know someone who does?  What are your symptoms?

–Your Stylist, Jessica Gimeno

JessicaGimeno

Hi, I have five illnesses--bipolar disorder, myasthenia gravis (neuromuscular autoimmune disease), polycystic ovarian syndrome, asthma, and psoriasis. Most of the organs in my body are affected. I'm dedicated to being a stylist for sick women. As someone who has experienced changes in my appearance due to my 12 meds (including Prednisone), I know how hard it can be when your face and body change overnight. (In fact, because of treatment, between 2008 to 2010, I went from a size 0 to a size 10. While I lost the weight, there are permanent changes in my face and body, which I've grown to appreciate.) My blog will also help women deal with other issues like surviving chronic pain and fatigue. Healthy people can also use this blog as a window into what life with illness is like. Let this website be a place where we can draw strength from each other despite our illnesses and find solutions to our everyday challenges!

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